Understanding Clinical Trials Booklet - Crystal Mark

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Understanding clinical trials 3 Contents Introduction What are clinical trials? Why are clinical trials important? How are trials set up? Who can take part in clinical trials? How are people asked to take part in a trial? What are the risks and benefits of trials? How are trials supported? How are trials designed and run? Are there different types of trial? Why do some trials need a lot of people? Why do trials sometimes take many years? Are you thinking about joining a trial? What is ‘inform
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  8 ^ocn{xsbocgojhlgoghbl s{gblx  Hiosnosx Gos{ic~hsgioZabs b{n hlgoghbl s{gblx9 Zaw b{n hlgoghbl s{gblx gfui{sbos9Aiz b{n s{gblx xns ~u9Zai hbo sb`n ub{s go hlgoghbl s{gblx9Aiz b{n uniuln bx`nc si sb`n ub{s go b s{gbl9Zabs b{n san {gx`x boc knonsx id s{gblx9Aiz b{n s{gblx x~uui{snc9 Aiz b{n s{gblx cnxgjonc boc {~o9 B{n san{n cgddn{nos swunx id s{gbl9Zaw ci xifn s{gblx onnc b lis id uniuln9Zaw ci s{gblx xifnsgfnx sb`n fbow wnb{x9 B{n wi~ sago`goj bki~s migogoj b s{gbl9 Zabs gx ‑godi{fnc hioxnos‗9Zabs abuunox c~{goj b s{gbl9Zabs abuunox bs san noc id b s{gbl9Zgll fw godi{fbsgio kn hiocnosgbl9Zabs abuunox gd xifnsagoj jinx z{ioj9Aiz hbo G oc i~s bki~s s{gblx sabs b{n abuunogoj oiz9Zabs xai~lc G bx` kndi{n G migo b s{gbl9 Zan{n hbo G oc fi{n godi{fbsgio9 Lgo`xI{jbogxbsgioxBh`oizlncjnfnosx3>4:17252;282821212727;2;;;;;8;8;385858;8> 8 ^ocn{xsbocgoj hlgoghbl s{gblx tn{xgio ; !Ihsikn{ ;525'  Gos{ic~hsgio Gd wi~ b{n {nhngtgoj OAX s{nbsfnos wi~ fbw kn bx`nc si sb`n ub{s go bhlgoghbl s{gbl/ Hlgoghbl s{gblx b{n {nxnb{ha xs~cgnx sabs gotiltn ubsgnosx i{anblsaw uniuln/ Sanw b{n cnxgjonc si snxs onz s{nbsfnosx/ Zn abtn u{ic~hnc sagx kii`lns si boxzn{ fbow r~nxsgiox uniuln bx`bki~s hlgoghbl s{gblx/ Gs nqulbgox zabs hlgoghbl s{gblx b{n, boc zaw boc aizsanw b{n hb{{gnc i~s/ Gs gx cnxgjonc si jgtn wi~ san godi{fbsgio wi~ onncsi anlu wi~ si cnhgcn zansan{ si sb`n ub{s go b s{gbl/ Gs blxi gohl~cnx xifnid san r~nxsgiox wi~ fbw zbos si bx` kndi{n wi~ fb`n b cnhgxgio bki~ssb`goj ub{s b s{gbl/   Go sagx kii`lns zn ~xn san sn{f ‑s{nbsfnosx‗ si fnbo b zgcn{bojn id anblsa hb{n buu{ibhanx sabs hbo kn snxsnc go hlgoghbls{gblx gohl~cgoj c{~jx, tbhhgonx, onz buu{ibhanx si u{ntnosgojcgxnbxn, x~{jn{w, {bcgisan{buw, uawxghbl boc uxwhailijghblsan{bugnx, nc~hbsgiobl u{ij{bffnx boc fnsaicx id cgbjoixgojcgxnbxn/Hlgoghbl s{gblx b{n fncghbl {nxnb{ha xs~cgnx si snxs zansan{ cgddn{noss{nbsfnosx b{n xbdn boc aiz znll sanw zi{`/ Xifn s{gblx gotiltn anblsawfnfkn{x id san u~klgh, boc isan{x gotiltn ubsgnosx zai fbw kn iddn{ncsan iusgio id sb`goj ub{s go b s{gbl c~{goj sang{ hb{n boc s{nbsfnos/Hlgoghbl s{gblx hitn{ b zgcn {bojn id cgddn{nos swunx id {nxnb{ha/ Di{nqbfuln, s{gblx b{n idsno ~xnc si snxs onz fncghgonx i{ tbhhgonx, k~ssanw hbo blxi kn ~xnc si lii` bs onz hifkgobsgiox id nqgxsgoj fncghgonx/Sanw hbo blxi kn ~xnc si snxs zansan{ jgtgoj b s{nbsfnos go b cgddn{noszbw zgll fb`n gs fi{n nddnhsgtn i{ {nc~hn bow xgcn nddnhsx/ Xifn s{gblx b{ncnxgjonc si s{w i~s zbwx si u{ntnos b ub{sgh~lb{ cgxnbxn go uniuln zaiabtn ontn{ abc san cgxnbxn, i{ si u{ntnos b cgxnbxn d{if {ns~{ogoj/ Zabs b{n hlgoghbl s{gblx9 Hlgoghbl s{gblx bgf si oc san knxs zbwx si= ã u{ntnos cgxnbxn boc {nc~hn san o~fkn{ id uniuln zaiknhifn gllã s{nbs gllonxx si gfu{itn x~{tgtbl {bsnx i{ goh{nbxn san o~fkn{ iduniuln h~{ncã gfu{itn san r~blgsw id lgdn di{ uniuln lgtgoj zgsa gllonxx,gohl~cgoj {nc~hgoj xwfusifx i{ san xgcn nddnhsx id s{nbsfnosx,x~ha bx hanfisan{buw, bocã cgbjoixn cgxnbxnx boc anblsa u{iklnfx 3>  San s{nbsfnosx kngoj snxsnc go sanxn swunx id xs~cgnx hbo gohl~cntbhhgonx, k~s fbw blxi gotiltn c{~jx i{ cgnsb{w x~uulnfnosx x~habx tgsbfgox boc fgon{blx/Hlgoghbl s{gblx b{n ois blzbwx bki~s snxsgoj fncghgonx, sanw hbokn ~xnc si snxs zbwx si anlu uniuln habojn sang{ knabtgi~{ i{lgdnxswln/ Sagx hi~lc gohl~cn bo nc~hbsgiobl u{ij{bffn cnxgjoncsi gfu{itn b un{xio‗x ~ocn{xsbocgoj id sang{ fncghbl hiocgsgio xisanw hbo fbobjn gs fi{n nddnhsgtnlw, i{ b uxwhailijghbl s{nbsfnos,x~ha bx hijogsgtn knabtgi~{bl san{buw, si s{nbs boqgnsw i{cnu{nxxgio/ Zaw b{n hlgoghbl s{gblx gfui{sbos9 Hlgoghbl s{gblx b{n san knxs zbw si hifub{n cgddn{nos buu{ibhanxsi u{ntnosgoj boc s{nbsgoj gllonxx boc anblsa u{iklnfx/ Anblsau{idnxxgioblx boc ubsgnosx onnc san ntgcnohn d{if s{gblx si `oizzagha s{nbsfnosx zi{` knxs/ Zgsai~s s{gblx, san{n gx b {gx` sabsuniuln hi~lc kn jgtno s{nbsfnosx zagha abtn oi bctbosbjn,zbxsn {nxi~{hnx boc hi~lc kn ab{fd~l/ Fbow s{nbsfnosx sabs b{noiz hiffiolw ~xnc zn{n snxsnc go hlgoghbl s{gblx/Xifn swunx id hlgoghbl s{gbl b{n cnxgjonc si lii` bs b s{nbsfnosbs bo nb{lw xsbjn id gsx cntnliufnos/ [nxnb{han{x boc {nj~lbsi{xzgll lii` bs san godi{fbsgio jbsan{nc d{if san s{gbl boc cnhgcnzansan{ gs gx xbdn boc buu{iu{gbsn si hiosgo~n san cntnliugojsan s{nbsfnos/ Gd san s{nbsfnos abx oi knons, i{ abx xn{gi~x xgcnnddnhsx, gs fbw ois kn cntnliunc d~{san{/ C~{goj san lbsn{ xsbjnx id b s{nbsfnos kngoj cntnliunc, {nxnb{han{x zgll{nui{s io san knonsx boc {gx`x xi sabs cihsi{x hbo cnhgcn zansan{ si~xn gs, i{ aiz knxs si ~xn gs/ Gs gx gfui{sbos sabs san {nx~lsx id hlgoghbl s{gblxb{n u~klgxanc xi sabs isan{ uniuln hbo ~xn san godi{fbsgio si anlu sanffb`n cnhgxgiox bki~s s{nbsfnos boc anblsa hb{n/ [nx~lsx d{if hlgoghbls{gblx blxi di{f bo gfui{sbos ub{s id san ntgcnohn ~xnc si cnhgcn zansan{b ub{sgh~lb{ s{nbsfnos zgll kn u{itgcnc sa{i~ja san OAX/ Aiz b{n s{gblx xns ~u9 Hlgoghbl s{gblx b{n cnxgjonc kw cihsi{x boc isan{ xunhgblgxsx, zgsa gou~sd{if b zgcn {bojn id uniuln, goh{nbxgojlw gohl~cgoj ubsgnosx/ Sanw zi{`sijnsan{ si cnhgcn zabs r~nxsgiox onnc si kn boxzn{nc/ Dg{xs id bll sanwlii` hb{nd~llw bs san {nx~lsx id bow s{gblx sabs abtn bl{nbcw knno hb{{gnci~s si oc i~s zabs gx bl{nbcw `oizo/ Sagx gx hbllnc b xwxsnfbsgh {ntgnz/B xwxsnfbsgh {ntgnz u{itgcnx fi{n bhh~{bsn boxzn{x sabo gocgtgc~bls{gblx, boc blxi anlux si gcnosgdw gfui{sbos r~nxsgiox sabs xsgll onnc si knboxzn{nc sa{i~ja d~{san{ {nxnb{ha/Cihsi{x, o~{xnx, ubsgnosx boc {nxnb{han{x zi{` sijnsan{ zgsa xsbsgxsghgbox,s{gbl fbobjn{x boc {nu{nxnosbsgtnx d{if uab{fbhn~sghbl hifubognx, gd{nlntbos, si cnxgjo san knxs uixxgkln s{gbl/ San cnxgjo di{ san s{gbl di{fxsan kbxgx id san s{gbl u{isihil/ :4
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